At first, we didn’t know what it was.
The doctors came in and told us that they needed to do some testing. The next morning, we found out that our newborn daughter Ester, our 5th child, was born with a skull which closed prematurely in utero.
Her brain would have no space to grow into, and slowly build pressure against the skull bone causing different brain functions to fail.
At 6 months of age, Ester underwent an extensive 11 hour surgery which opened up the sutures in her skull so that her brain would have sufficient space to develop.
As Ester developed she was constantly seen by doctors and specialists to assess her progress in all areas of functioning. She was poked and proded by nurses, spending lots of her terrible twos at doctors offices.
As time went on, Ester was growing up to be a healthy little girl.
Her charm and easy going nature were infectious.
By age 5, Ester began to realize she looked different than her peers.
Now when children in playgrounds stop to take a second look, she understands it’s about her.
People often go as far as pointing fingers and letting out a comment which cause Ester to run to me, crying, and hiding herself in my skirt.
She began to ask questions as to why she looks this way?
Why do other children stand and stare at her?
Why do the teachers at school think she is incapable to perform, talking to her in simplistic language?
Sometimes, Ester stands in the mirror trying to figure out if she puts her hair a certain way, or maybe if she wears a hat, maybe no one will notice?
You see, for Ester, looking different is something she is completely conscious about. Since she is emotionally and physically developing as her peers, she is acutely aware of her differences.
That can be very frightening for a child.
The good news is, there is hope for Ester.
Hope that she can look like her siblings, friends and classmates.
Hope that she will not feel that meeting new people is as frightening as it feels now.
Hope that when she goes to the park, she isn’t the laughing stock of the group.
And hope that someday she will be accepted as who she is, not judged as second class.
She needs to undergo cranial vault remodeling of her skull, as well as bringing the eyes closer together so they are more symmetrical. The cost of this surgery is $210,000. Since Dr Fearon is a private doctor, insurance will not cover the cost. Dr Fearon has come to a cost agreement which will bring the cost of the surgery down to $51,173.10.
If we get the funds we will be traveling to Dallas, Texas right away…
The discount is subject to change, only valid for three months, we will travel to get it done the second we get the funds.
Yes, I know that Ester isn’t your daughter and you have so many expenses caring for your own families. I am just putting this out there with the hope that people will help, because I have no other choice. If you do chose to give, I thank you in advance for your incredible generosity.
Link to support: https://www.charidy.com/ester