AVENTURA, FL – At first glance, looks like a normal almost-two-year-old baby.
But she cannot stand or walk.
After visiting many doctors and specialists, her parents finally got the diagnoses – Eliana has a rare genetic disorder called SMA2. As it progresses, she may even lose the ability to breathe and eat on her own.
But there’s a glimmer of hope – a unique medication has just been developed, a miracle drug called Zolgensma. This medication can literally regenerate the missing gene.
This medication is so rare, and so new, that it costs a whopping $2.2 million dollars for a single dose. A single, life-saving injection. Insurance is refusing to cover the costs of this drug, despite attempts by doctors and lawyers to appeal the decision.
To make matters worse, Eliana only has until this coming Friday to receive the dose. Eliana’s birthday is on Friday. She turns two. And the FDA doesn’t approve the drug for anyone over two years old.
Her fate will be sealed on her birthday.
The World Unites
A desperate crowdfunding campaign has been launched to save Eliana. Using the commission-free Chesed Fund crowdfunding platform, where every dollar goes right to the cause, Eliana’s family has managed to raise $1.5 MILLION in just three days.
Over 18,000 people have stepped up, most of whom have never heard of Eliana before. But they have united to try to save her life.
The success of this campaign is unprecedented, and yet it is so far from its goal. Eliana and her family are banking on random strangers to continue to step up and make the difference.
$18 might not be a lot for you, but it might just buy Eliana her life.
“If you save one life, it’s as if you save the entire world.”